The dangerous hypocrisy of disability provision. Being an autistic mother.

Imagine this; a person with a legally recognised disability, amounting to a protected characteristic under equalities law, being systematically denied their rights. And the methodology used to withold these legally enshrined rights (to assessement and provision), is a concerted campaign of blame, false allegations and psychological abuse. This could be the premise of a best-selling … Continue reading The dangerous hypocrisy of disability provision. Being an autistic mother.

As a mum to autistic children, I regret sharing my autism diagnosis. I have received blame, not support.

Revealing an autism diagnosis to others is a daunting prospect. No matter how much pride you have in yourself and your neurotype, the process of sharing personal information can place you in a vulnerable position. The response of others is never predictable, and whether you are emotionally invested in their response or not, it is … Continue reading As a mum to autistic children, I regret sharing my autism diagnosis. I have received blame, not support.

Thinking of independently instructing an autism expert? Then read this – my top 7 considerations.

Disclaimer: I am writing this from a UK-centric perspective and so some information will be specific to the UK (England) only. In England, specialist services for autism (in relation to both assessment and post diagnostic support) are severely lacking in funding. Waiting lists for children's NHS assessments can run to several years, and in terms … Continue reading Thinking of independently instructing an autism expert? Then read this – my top 7 considerations.

Why is an autistic lifestyle seldom deemed good enough?

Isn't happiness and contentment the holy grail of modernity? Is this not what we're all seeking to achieve? We can all agree that happiness and contentment are subjective to each individual. There are, of course, certain shared contextual necessities to enable happiness and contentment to thrive - freedom from pain, abuse and fear, for example … Continue reading Why is an autistic lifestyle seldom deemed good enough?

Parenting too far? The “strange” things I do to help my autistic child.

Last weekend I sat for two hours shredding up perfectly acceptable trainers. As I was doing so I was torn between feelings of pride and self-admonishment. My autistic son has many rituals and anxieties around his footwear and in order for him to wear his new trainers, the old trainers must be destroyed so thoroughly … Continue reading Parenting too far? The “strange” things I do to help my autistic child.

Introducing : Helping Your Child with PDA Live a Happier Life

I am very excited to announce the publication of my first book - Helping Your Child with PDA Live a Happier Life. In 2019 I was approached by Jessica Kingsley Publishers and asked to put forward a proposal for a book about supporting autistic children with PDA. (Pathological Demand Avoidance) After two years of hard … Continue reading Introducing : Helping Your Child with PDA Live a Happier Life

Musings of a Neurodiverse Mind : Consciousness, introspection and being “in the moment”

There's a popular meme which goes something like this: my mind is like a laptop with five different tabs open and none of them are responding. As an autistic woman I can relate to this. But not perhaps as the creator of the meme intended. My neurodiverse mind is a busy one, there is always … Continue reading Musings of a Neurodiverse Mind : Consciousness, introspection and being “in the moment”

Autism and contradictory behaviours: diagnosis called into question.

Obtaining a diagnosis for a "hidden disability", such as autism, can be notoriously difficult to do. Especially if you have had to blend in with neurotypical society for sometime. But what happens when following that hard-won diagnosis, people begin to question its validity? Friends or professionals begin to challenge how you could possibly be autistic … Continue reading Autism and contradictory behaviours: diagnosis called into question.

Autism “Awareness” – Reflections across a generation.

My children and I are openly autistic. My children were eventually given their diagnoses in 2016 and 2018. I received mine shortly after. I grew up in an era where "autism" was relatively unheard of outside of specialist medical professions. Diagnostic labels during my childhood (in the 1980's and 1990's) were restricted to "Kanner's autism" … Continue reading Autism “Awareness” – Reflections across a generation.

Why is early autism diagnosis so important? (My guilt as a mother.)

I've read many articles citing a link between early autism diagnosis and best long term outcomes for autistic children. The arguments presented around this largely focus upon, the sooner interventions can be applied to an autistic child, the best chance of a successful adulthood for the child. Implicit within this outcome is the desire to … Continue reading Why is early autism diagnosis so important? (My guilt as a mother.)