Without divulging the intricate details of how my autistic family "meltdown", I do want to talk about when things begin to fall apart and the most recent professional advice I have received regarding dealing with "dysregulation" / "meltdowns" / "heightened behaviour" / "episodes of distress". There are so many words for autistic overload and I … Continue reading Spoon theory and autism. Is it helpful?
Mainstream media is awash with lazy descriptions of autism. The same phrases are repetitively harnessed and published (seemingly) without consideration given to the fact that they might not be accurate. Or be extremely offensive towards a group of people already marginalised by society. A simple news search delivers some pertinent examples, just from this week: … Continue reading Slurs against autism – 3 phrases I hate to hear, as an autistic person.
Imagine this; a person with a legally recognised disability, amounting to a protected characteristic under equalities law, being systematically denied their rights. And the methodology used to withold these legally enshrined rights (to assessement and provision), is a concerted campaign of blame, false allegations and psychological abuse. This could be the premise of a best-selling … Continue reading The dangerous hypocrisy of disability provision. Being an autistic mother.
Revealing an autism diagnosis to others is a daunting prospect. No matter how much pride you have in yourself and your neurotype, the process of sharing personal information can place you in a vulnerable position. The response of others is never predictable, and whether you are emotionally invested in their response or not, it is … Continue reading As a mum to autistic children, I regret sharing my autism diagnosis. I have received blame, not support.
Disclaimer: I am writing this from a UK-centric perspective and so some information will be specific to the UK (England) only. In England, specialist services for autism (in relation to both assessment and post diagnostic support) are severely lacking in funding. Waiting lists for children's NHS assessments can run to several years, and in terms … Continue reading Thinking of independently instructing an autism expert? Then read this – my top 7 considerations.
Isn't happiness and contentment the holy grail of modernity? Is this not what we're all seeking to achieve? We can all agree that happiness and contentment are subjective to each individual. There are, of course, certain shared contextual necessities to enable happiness and contentment to thrive - freedom from pain, abuse and fear, for example … Continue reading Why is an autistic lifestyle seldom deemed good enough?
Last weekend I sat for two hours shredding up perfectly acceptable trainers. As I was doing so I was torn between feelings of pride and self-admonishment. My autistic son has many rituals and anxieties around his footwear and in order for him to wear his new trainers, the old trainers must be destroyed so thoroughly … Continue reading Parenting too far? The “strange” things I do to help my autistic child.
I am very excited to announce the publication of my first book - Helping Your Child with PDA Live a Happier Life. In 2019 I was approached by Jessica Kingsley Publishers and asked to put forward a proposal for a book about supporting autistic children with PDA. (Pathological Demand Avoidance) After two years of hard … Continue reading Introducing : Helping Your Child with PDA Live a Happier Life
There's a popular meme which goes something like this: my mind is like a laptop with five different tabs open and none of them are responding. As an autistic woman I can relate to this. But not perhaps as the creator of the meme intended. My neurodiverse mind is a busy one, there is always … Continue reading Musings of a Neurodiverse Mind : Consciousness, introspection and being “in the moment”
Obtaining a diagnosis for a "hidden disability", such as autism, can be notoriously difficult to do. Especially if you have had to blend in with neurotypical society for sometime. But what happens when following that hard-won diagnosis, people begin to question its validity? Friends or professionals begin to challenge how you could possibly be autistic … Continue reading Autism and contradictory behaviours: diagnosis called into question.